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Mar 2004

ARMENIA :: New horizons for the mentally ill and mentally handicapped

“I often think of the day care centres and the mental health centre as oases of humanity amidst the daily misery.”

The population of Armenia has to endure extremely trying economic conditions. Things are even worse for the mentally handicapped and mentally ill in this country in the Caucasus. For years, Médecins Sans Frontières has been actively trying to improve the inhumane conditions in the psychiatric institutions there, and is now taking a new approach: along with their families, those needing attention are now being treated as outpatients. Tido von Schön-Angerer is a doctor and has been working as country coordinator in Armenia with Médecins Sans Frontières for a number of years. In the following interview, he explains how this aid works.

How do things look for the mentally handicapped and the mentally ill in Armenia?
Over half of the population of Armenia lives below the official poverty line, and has to survive on less than 17 euros a month. The mentally ill and their families are often amongst the poorest of the poor, since the time-consuming care called for in such cases often means it is impossible to work. On top of the disastrous economic consequences, the mentally ill and their families also have to cope with being shunned and stigmatised. There is a long-standing tradition of family solidarity in Armenia, but many of these people are nonetheless unable to cope with the social isolation they are subjected to. Consequently, the mentally ill and the mentally handicapped are often kept out of the public eye, and are forced to live in inhumane conditions. Some are even sectioned on a permanent basis.

Offering outpatient psychiatric care for the mentally ill and the mentally handicappedArmenia was the first country in the former Soviet Union in which Médecins Sans Frontières was active, following the serious earthquake there in 1988. Since then, the organisation has provided aid to the approximately 2.5 million inhabitants of this country in the Caucasus in the form of various medical projects. These primarily comprise psychiatric projects, since inhumane conditions are often the norm in Armenia in this respect. We are now applying new methods by offering outpatient psychiatric care for the mentally ill and the mentally handicapped in a joint pilot project with the Armenian ministry of health. This opens new horizons for those affected and their families.
Photo © German Avagyan

Are those affected and their families entitled to any state support?
Theoretically, the mentally ill are entitled to free treatment. But with the country’s insufficient healthcare budget, this right invariably only exists on paper. The benefits for the handicapped, to which many are entitled, amounts to a maximum of eight euros a month – and that’s not even enough to buy bread. Poverty is therefore extreme, especially in winter when temperatures can sink to as low as minus 30°C and when some people attempt to heat their rooms using waste from the rubbish tip. We consequently provided 270 families with warm blankets and heating this winter.

Was there any kind of outpatient healthcare for the mentally ill and mentally handicapped before Médecins Sans Frontières set up its aid programme in cooperation with the Armenian ministry of health?
We spent many years working in various psychiatric clinics in Armenia, in order to create at least half-decent conditions. We also repeatedly tried to get many people whose hospitalisation had been totally unnecessary released. But it soon became clear that this was impossible without the necessary outpatient care in place. During the Soviet era, the job descriptions “social worker” and “clinical psychologist” didn’t even exist. The standard of the psychiatric treatment is often very low, and is in many cases limited to merely issuing repeat prescriptions without any kind of consultation – that is, assuming that the medicine is actually available at all. No, a day care centre like the one we have established is completely new to Armenia.

Promoting tolerance of the mentally illMédecins Sans Frontières has worked at the large psychiatric clinic in Sevan for a number of years, promoting tolerance of the mentally ill. The organisation’s initiative resulted in a mental health centre for outpatient psychiatric care being opened, after Médecins Sans Frontières had renovated the premises. The photo shows one of the centre’s social workers talking to the father of one of their outpatients. Adults and children alike are provided with psychiatric and psychological help, and the staff also offers consultation and support in social and legal matters. This is ground-breaking, as the job descriptions of “clinical psychologist” and “social worker” did not even exist under the Soviet regime.
Photo © German Avagyan

Are there any special schools for children with mental problems or handicaps?
Yes, there are homes for such cases, but they are permanently overcrowded. More and more poverty-stricken families are attempting to get their perfectly healthy children taken in at these homes so that they at least have something to eat and clothes to wear. And from the point of view of the people running these homes it is, of course, easier to look after these healthy children. Until recently it was even not uncommon for some particularly extreme cases of mentally ill or handicapped children to be put in psychiatric clinics for adults, which are totally unsuitable.

Photo © German Avagyan

What is the approach of the Médecins Sans Frontières project?
We are endeavouring to provide holistic aid in line with the local conditions. On the one hand, we have the day care centres which draw people out of their isolation. With our wide array of occupational therapy, these centres offer them the opportunity to discover new things, take part in new activities and learn new things, through which they are able to regain their self-confidence. On the other hand, there is the mental health centre, where anyone who needs it can obtain free expert help from psychiatrists, psychologists and social workers. I often think of the day care centres and the mental health centre as oases of humanity amidst the daily misery. We have invested a great deal of time and effort into involving the ministry of health in this project, so that it is a positive learning experience for everyone involved.

At the home of a patient who comes to the day care centre regularlyThere are also discussion forums for the family members of the day care centre to exchange ideas and points of views. Psychologists and social workers work in close cooperation with the families to both raise the level of understanding of the patients and increase their social integration. They also call in on the families in their homes. This photo was taken at the home of a patient who comes to the day care centre regularly. The young girl lives in a village not far from Sevan. She is depicted here spinning wool with her sister-in-law. In the past, her family had kept her hidden away and not entrusted her with any tasks as a result of her speech problems and mental handicap. The day care centre gives her plenty of opportunities to take part in creative workshops and thus express herself.

Photo © German Avagyan

What sort of changes do you see in the children and adults who regularly visit a Médecins Sans Frontières day care centre?
Bearing in mind the previous neglect and isolation, the changes are often quick and phenomenal: for example, it’s not unusual for a visitor to the centre to start talking again after many years of silence, or for someone to learn how to interact socially with others for the first time. Others that we help become much more balanced and consequently need less inpatient care.

Photo © German Avagyan

Are the family members happy to go along with the consultation and support offered, and does it change the way the families live together?
The majority of families welcome the project. Some family members even take on active roles by helping out in the day care centres. But the increase in the self-confidence of some of the visitors to the centres has also resulted in conflicts, and even in violence, within the families. This was usually the case when the family members could not accept that their mentally ill relative suddenly had a mind of their own. As a result, we also work intensively with the families.

The girl in this picture made these two dolls in a workshopThe girl in this picture made these two dolls in a workshop. This boosts self-confidence and is good for the self-esteem of a child with autistic tendencies. She is unmistakably proud of her work.

How long does Médecins Sans Frontières plan to continue to run the scheme, and are there any plans to hand it over to the ministry of health or an Armenian NGO?
We will remain at the helm until the end of 2006 at least, after which the scheme will probably be taken over by the ministry of health and a local organisation – albeit only to a certain degree. Sustainability is only possible to a limited extent in such a poor country, and that’s not our objective anyway. We want to help the people here and now. And if we manage to make people think differently about the mentally ill and the mentally handicapped in Armenia, we have already achieved a great deal.

 

Médecins Sans Frontières provides STD treatment and voluntary counseling and testing for HIV in a clinic in Bagratashen (a town on the border between Armenia and Georgia) and also carries out prevention activities with sex workers in northern Armenia. In Berd, close to the border with Azerbaijan, Médecins Sans Frontières works with a local women’s group to provide peer counseling for the community on family planning, safe pregnancy and newborn care. Médecins Sans Frontières runs an outpatient mental health center and offers occupational therapy at a day center in Sevan. Support for mental health services in Nagorno-Karabakh began in May 2003. In Yerevan, Médecins Sans Frontières has run a combined medical, psychological and social care program for young people in the Vardashan Institute since 1997. Work treating tuberculosis in Nagorno-Karabakh came to an end in December 2002.
Armenia map

COUNTRY PROFILE
Armenia
Population: 3,790,000
Life expectancy: 73 years
MSF international staff: 14
MSF national staff: 91

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