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More on Kala Azar

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Sudan: Treating up to 150 patients a day for Kala Azar

Since January 2010, Médecins Sans Frontières has been running a kala azar treatment centre in the state of Al-Gedaref in eastern Sudan. We talk to the doctor in charge of the project.

Doctor from Darwin writes of her work in Sudan

Sudan / 25.11.11

Deep mud makes getting to and from the clinic hard work, even by 4WD.

Jacqueline Boyd is a doctor from Darwin, who has just returned from her first field placement with Médecins Sans Frontières. Jacqueline was working in Gedaref, Sudan, where the organisation has been running a program treating the neglected disease, kala azar, since January 2010.

Throughout the world, kala azar is a little-known and neglected disease. Also known as visceral leishmaniasis in the medical world, in Australia it is an obscure disease which few have seen and comes up only in physician exams. In this part of the world it is a sad reality for too many.

Médecins Sans Frontières has a kala azar treatment centre in the eastern part of Sudan in a little remote town called Tabarak Allah, just near the Ethiopian/Eritrean border. It is a harsh environment with extreme heat over 50 degrees in the summer and in the rainy season accessible only by tractor, where a two hour dirt road is turned into a whole day adventure to get to the state capital. The treatment centre is in the Atbara region of Gedaref state, one of the hotspots for kala azar in Sudan. We work alongside the pre-existing Ministry of Health hospital, providing free treatment for patients with kala azar and its complications.

Kala azar is a terrible disease spread by sandflies with an almost 100% mortality if left untreated. Treatments are harsh and expensive and the reality in Sudan is many do not have access to the safer drugs if needed due to the cost. It is not uncommon for patients to be unwell for two or three months before seeking treatment, during which time they have suffered ongoing fever, enlarging lymph nodes, low blood counts making them increasingly tired and their bellies are often swollen due to the size of their spleens. The patients have poor immunity as their bone marrow is filled with parasites, subjecting them to severe infections in addition to the disease itself. Kala azar treatment usually involves a month of painful daily injections into the buttocks with highly toxic medications, but there are little other options. Patients stay at the hospital for the duration of treatment, so a diagnosis of kala azar automatically means at least a month away from home.

Here in Gedaref, we have just started a combination therapy which has been used successfully elsewhere in eastern Africa, doubling the injections but reducing the hospital stay to 17 days. Still the injections are excruciating: the piercing screams of the children at the daily injection time shall stay with me for a while to come.

It is a disease where patients can be brought back from the brink with just a few doses of kala azar treatment, some antibiotics and a blood transfusion. To see the improvement of a three year old with severe malnutrition (the weight of a six month old) turn the corner and start smiling again is difficult to describe, but the look on the mother’s face sums it up pretty well.

Patients rest in the ward.

Kala azar in pregnancy is something I have learned to fear as it always seems to be more complicated. One patient I shall not forget is a woman of my age, six and a half months’ pregnant and severely ill with an overwhelming infection in addition to resistant kala azar and malaria infection. After some days on the ward she went into labour, delivering a very premature baby who at home would have warranted neonatal intensive care for its age alone. Miraculously, after she returned from the obstetrics hospital, she walked out of our treatment centre with a healthy little bub. The treatment centre offers the basics, but often that is all that is needed.

I never really had a chance to establish a daily routine, but I think that may not be so uncommon working with Médecins Sans Frontières. At the start of my field placement, I was learning anything I could about kala azar from the staff who have been working with the disease for some time. Generally we would do a ward round of the hospital patients (with my fairly dismal attempt at Arabic) then review and admit patients as needed. Only a few weeks into my placement, we saw our first measles case in a kala azar patient and I guess we knew from that point that things were going to get a little crazy. Before we knew it, Médecins Sans Frontières was taking the lead in managing a measles epidemic.

A Médecins Sans Frontières tent extended the existing isolation ward at the back if our hospital and by the end of the epidemic we had treated over 600 active measles cases. We would often get waved down by people in the villages when passing through, to the point that we carried medicines for measles in the car so we could treat the cases we saw. It is a common misconception even at home that measles is a benign childhood disease, but children can go blind, have permanent brain damage or die from the complications of measles. The only treatment is supportive, to try and prevent complications. The mainstay of a measles response is to vaccinate kids at risk. After much negotiation we embarked on a vaccination campaign across the entire locality, vaccinating over 44,000 children over eight days. Helping manage the epidemic was an utterly exhausting but extremely rewarding experience that I am still not quite sure how I fell into. It was my first taste of emergency responses and I admit I can see why people are drawn to them.

Life in the field is a world away from Australia but it quickly becomes the norm as it is the reality everyone around you is living too.  My little hut with a grass roof becomes home. We shake out our beds looking for scorpions each night without thinking. We know that to send an email might take half an hour to get the network working. We occasionally make excuses to visit the pharmacy (which has the only air conditioner in town) when the mercury hits 50. We wear gumboots when it starts raining as even our hiking boots don’t stand a chance against the mud. Completely different from home, but that’s what I love about it.

Kala-azar remains a neglected disease, but awareness is increasing and more funding and research will hopefully improve the treatments available and lessen the impact of the disease in the future. Although as international staff, our time here will come to an end, the national staff continue and the project is ongoing, one day to be transferred back to the Ministry of Health. When leaving the field, I feel I gained more than I was able to give back, but for next time with these experiences, maybe the tables will be turned.

  

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COMMENTS

Displaying results 1 to 10 out of 10
 
Regarding the painful injections, would it be possible to give them a local anasthetic first--or even in the same shot for that matter?
Craig ,
Thursday, 01-12-11 01:23
Being born in Sudan when my parents were missionaries working with the leprosy problems I find any news of the country fascinating. This is one disease I had not heard of so I hope to hear more of the condition and success in treatment. Thank you for the article.
Susan Hackwood, Toowoomba
Sunday, 27-11-11 10:00
Every time I read of the work of MSF field staff I am filled with admiration and pride to be associated with you. I need no persuasion to continue my financial support; I only wish I could do more.May you be rewarded in ways that transcend financial gain for enduring the privations and risks -to say nothing of the separation from family and friends- that such work entails.
Ernest Azzopardi, Meadow Springs WA
Saturday, 26-11-11 23:08
Years ago my husband and I contributed to varying charities. Our financial circumstances have changed and we are no longer able to be as generous as we would wish.
We had to make a decision about who we would stay with. As Medicins sans Frontieres goes anywhere and everywhere, and is non religious, we decided from a humanitarian point of view that is where our small donations would go. Having just read Jaqueline's article only reinforces our view that MSF is a very worthy place for our very small donations to go.
I have the utmost admiration for all MSF staff - people who give of themselves with love and willingness.
I hope our wee donations can continue and stay meaningful.
Willi C
Willi Carney, Eaglehawk. Vic, Oz.
Friday, 25-11-11 15:58
It is hard to believe that the living hell in which the people of Sudan live is actually 'home' to them whereas we, spoilt that we are, cannot even envisage their lot. I feel ashamed and terribly sorry for these proud and dignified people. I cannot understand how governments can let such things happen. Corruption and greed from power-mad men are responsible. I hope there is some justice somewhere. Médecins Sans Frontière is such a worthy organisation. I can only repeat what the preceding people have said and thank you for all that you do.
Etiennette , Australia
Friday, 25-11-11 13:26
Jacqueline, your story about your work in Sudan is amazing. Its wonderful that you and your collegues are making such a contribution in such clearly trying conditions. It also encourages less brave and talented people like myself to do what we can from Australia by donating a little more....
Michael Behm, Brisbane Queensland
Friday, 25-11-11 13:01
The help you give to these wonderful people is so important I'm glad I can help in a small way
Dianne Steele, Mooroopna 3629
Friday, 25-11-11 11:21
Jacqueline, just reading your story brought me to tears, I cannot imagine what impact actually living it will have had on you. I have spent the past five years working with medical students and, if just a few of these fantastic young doctors follow in your footsteps, I will feel that I have contributed in a tiny way to helping reduce the suffering that continues to exist in our unequal world. Well done and be gentle on yourself.
Deborah , Narrogin, Western Australia
Friday, 25-11-11 11:13
Thank you so much for caring about people! I cannot commend your actions enough and I only hope you find it within yourself to continue suffering such difficult environmental conditions to alleviate the suffering of other humans. Thank you again and God bless you and yours in all that you do.
Kane ,
Friday, 25-11-11 11:08
Keep up the good work! It is so hard to imagine the world you describe - so far from my comfortable life but very much the reality in Africa. Our thanks and donations are all we can offer, plus the reward of a healthy patient at the end. Hope that is enough to keep this wonderful organisation going!
Lorraine ,
Friday, 25-11-11 10:43
 

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